National Organizations that Provide Assistance Paying for Medical Care and Procedures
Department of Health and Human Services (DHHS) [hhs.gov]
The Department of Health and Human Services (DHHS) has information on assistance in paying for medical care for low-income families. Go to “Families & Children.”
Government Benefits [benefits.gov]
The official government benefits website. This is a free, confidential tool that locates government benefits.
Health Resources and Services Administration [mchb.hrsa.gov]
The Health Resources and Services Administration (HRSA) of the DHHS website, Maternal and Child Health Bureau (MCHB), whose goal is to ensure equal access to quality health care in a supportive, culturally competent family and community setting.
Insure Kids Now [insurekidsnow.gov]
The Insure Kids Now website is a resource where you can find free or low cost health insurance for children and teens.
Find A Health Center [findahealthcenter.hrsa.gov]
You can find federally funded free or low cost medical and dental care by using the HRSA Find A Health Center tool.
Hill-Burton Facilities [hrsa.gov]
Hill-Burton facilities provide care to uninsured Americans. To locate a Hill-Burton facility in your area call 900-638-0742.
Financial Aid for Medical Treatments
Information on financial aid for medical treatments can also be obtained from the following patient advocacy organizations:
Family Voices offers resources and communication opportunities on the Internet for people with cognitive and other disabilities, for their families, and for those who provide services and support. This resource has a special interest in the care of children. Resources state by state. Family Voices [familyvoices.org]
Resources state by state
Note: Special interest in children
Your child may be eligible to receive social security. To find out if your child qualifies a publication from the Social Security Administration (SSI) [ssa.gov] outlines who may qualify, and how to get this money. It also provides links to the Children’s Health Insurance Program (CHIP) in each state.
Assistance with Paying for Medications
The Partnership for Prescription Assistance [pparx.org]
The Partnership for Prescription Assistance helps match patients who cannot afford medication to prescription assistance programs that provide free or nearly free medicines to eligible patients.
National Organization for Rare Disorders [rarediseases.org]
The National Organization for Rare Disorders (NORD) is a federation of more than 130 nonprofit, voluntary health organizations serving people with rare disorders. The NORD website includes information on medication assistance programs and networking programs, a resource guide and links to other online resources.
Contact NORD directly:
NORD’s Medication Assistance Programs
National Organization for Rare Disorders
Assistance with Insurance Issues
Centers for Medicare and Medicaid Services [cms.gov]
The website from the Centers for Medicare and Medicaid Services may provide information on qualifying for federal or state assistance for medical treatment.
Kaiser Health News [kaiserhealthnews.org/]
A nonprofit news organization committed to in-depth coverage of health care policy and politics.
Medicaid waivers are state-run programs that use federal and state funds to pay for health care for people with certain health conditions. In some states, families can apply for a medicaid waiver that waives the family income and looks only at the disabled person’s income. This allows people who would otherwise be ineligible for Medicaid to receive medical care. Most states have some type of Medicaid waiver program. To find out more about Medicaid waiver programs in general, as well as specific state programs, visit:
Medicaid Waivers [cms.gov]
The official U.S. government website for people with Medicare offers information specific to Medicare, including eligibility guidelines and enrollment for Medicare coverage.
Participation in Clinical Trials
The National Institutes of Health, through the National Library of Medicine, developed ClinicalTrials.gov to provide patients, family members, and members of the public with current information on clinical research studies. To find clinical trials, click on the link below and type the disease name as your search term. After you click on a study, review its “eligibility” criteria to determine its appropriateness. Use the study’s contact information to learn more. Check this site often for regular updates.
If there is a clinical trial for which you might be eligible and if you are interested in enrolling, you can find helpful general information on clinical trials on the ClinicalTrials.gov website on the National Human Genome Research Institute website at: Current NHGRI Clinical Studies.
Resources on many charitable or special-fare flights to research and treatment sites and low-cost hospitality accommodations for outpatients and family members, as well as ambulance services, are also listed on the ORDR Web pages [rarediseases.info.nih.gov].
Clinical Center [cc.nih.gov]
The NIH Clinical Center’s Patient Recruitment and Public Liaison (PRPL) Office assists patients, their families, and physicians by providing information on participating in research being conducted at the Warren Grant Magnuson Clinical Center, the NIH hospital in Bethesda, Maryland.